9,946 PLN (33%)Shortfall: 20,054 PLN
Neurofibromatosis Type I❗My 13-year-old daughter Maja wants to live❗
Highlights
Update
Mai's brother needs support
Kamil is 15 years old and is Maja’s younger brother. Four years ago, his life changed forever. During an MRI, doctors detected tumors, and further tests confirmed the diagnosis: neurofibromatosis type 1 (NF1), a rare genetic disorder that carries an increased risk of developing cancer. Since then, Kamil’s childhood has been different from that of most of his peers. Instead of carefree and spontaneous days, his daily life is marked by doctor’s visits, checkups, and the constant wait for test results. MRI scans, ultrasounds, and blood tests are a constant part of his life. Kamil has a severe vision impairment and requires regular checkups with specialists to monitor the condition and number of tumors in his body. Each subsequent visit brings hope, but also immense stress and uncertainty.Kamil also requires ongoing dental and orthodontic care. These are additional challenges that he and his loved ones must face every day. Unfortunately, recent tests have revealed more troubling news. A cardiac ultrasound detected numerous nodules. This news has caused great anxiety and raised many questions that remain unanswered for now. Further diagnostic tests are currently underway to determine exactly what Kamil is facing and whether the lesions are malignant. He and his family still have a long road ahead of them. Every bit of support gives them the strength to fight the disease, which constantly reminds them of its presence. On behalf of the family, we thank you for all your help. June 19, 2026
Explore the history of
The first signs from Maja's body
Maja was 2 years old when I noticed small, light-brown spots on her body. I immediately sensed that something was wrong. I decided to make a doctor’s appointment. I remember that day as if it were yesterday. Maja was sitting on my lap, calmly playing with her favorite teddy bear, when the doctor delivered the diagnosis: Neurofibromatosis Type I.
I don’t remember everything he said after that. I only remember the moment when time stood still. I looked at Maja and thought: why her?
Since then, Maja has been under constant medical supervision. Tests and consultations with various doctors have become part of our daily routine. However , the latest checkup was alarming—once again, our world came to a standstill. The sternum is pressing against the right ventricle of the heart. On top of that, she has sciatica, which may return. Orthopedic examinations only confirmed this.
Fear for the child's life
There are moments when I’m terrified. Unfortunately, I know what loss and unimaginable longing feel like. In December 2025, I said goodbye to my 19-year-old son Bartuś, who had cerebral palsy. He fought his whole life. Earlier, in 2016, my daughter Julia passed away after losing her battle with acute myeloid leukemia. She was 9 years old at the time.
Today, every one of Maja’s test results and every doctor’s visit is marked by intense fear. The memories have come flooding back. I look at her and my heart is filled with so many emotions; this fear is indescribable . I’ll do anything to protect her.
My daughter loves sports
Maja has always loved being active. Sports were her whole world. I couldn’t keep up with her when she ran. She ended up in a track and field class, and she was so proud of it—and I was proud of her. She also joined the Youth Fire Brigade, which brought her a lot of joy.
Now I look at her, sitting in her wheelchair. She’s still the same Majeczka, with a sparkle in her eyes and a twinkle in her smile. But I can see that she’s having a really hard time. The hardest part is that I can’t take that burden off her. I’m always by her side, ready at any moment to hold her hand and support her.
Everyday life can be tough
Today, our lives are different from what I once imagined. I don’t work, and neither does my husband. For years, we were there for Bartek. That was our daily life. Now we’re just trying to make ends meet. Majeczka also has a 15-year-old brother, Kamil, who also has NF1.
Please help me
There’s nothing worse than fearing for your own child’s life. That fear never goes away; it’s with me every moment. I look at Maja and see how much she wants to live a normal life. She tries so hard, despite all the limitations.
I am asking with all my heart for your help—for a chance for my daughter to continue her treatment and rehabilitation. For a life that is just a little bit easier.
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79,277.35 PLN(159%)
Goal achieved!
The fundraiser was supported by: 676 people
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Neurofibromatosis Type I❗My 13-year-old daughter Maja wants to live❗
79,277.35 PLN(159%)
Goal achieved!
The fundraiser was supported by: 676 people
Highlights
Collection target and updates
Mai's brother needs support
Kamil is 15 years old and is Maja’s younger brother. Four years ago, his life changed forever. During an MRI, doctors detected tumors, and further tests confirmed the diagnosis: neurofibromatosis type 1 (NF1), a rare genetic disorder that carries an increased risk of developing cancer. Since then, Kamil’s childhood has been different from that of most of his peers. Instead of carefree and spontaneous days, his daily life is marked by doctor’s visits, checkups, and the constant wait for test results. MRI scans, ultrasounds, and blood tests are a constant part of his life. Kamil has a severe vision impairment and requires regular checkups with specialists to monitor the condition and number of tumors in his body. Each subsequent visit brings hope, but also immense stress and uncertainty.
Explore the history of
The first signs from Maja's body
Maja was 2 years old when I noticed small, light-brown spots on her body. I immediately sensed that something was wrong. I decided to make a doctor’s appointment. I remember that day as if it were yesterday. Maja was sitting on my lap, calmly playing with her favorite teddy bear, when the doctor delivered the diagnosis: Neurofibromatosis Type I.
I don’t remember everything he said after that. I only remember the moment when time stood still. I looked at Maja and thought: why her?
Since then, Maja has been under constant medical supervision. Tests and consultations with various doctors have become part of our daily routine. However , the latest checkup was alarming—once again, our world came to a standstill. The sternum is pressing against the right ventricle of the heart. On top of that, she has sciatica, which may return. Orthopedic examinations only confirmed this.
Fear for the child's life
There are moments when I’m terrified. Unfortunately, I know what loss and unimaginable longing feel like. In December 2025, I said goodbye to my 19-year-old son Bartuś, who had cerebral palsy. He fought his whole life. Earlier, in 2016, my daughter Julia passed away after losing her battle with acute myeloid leukemia. She was 9 years old at the time.
Today, every one of Maja’s test results and every doctor’s visit is marked by intense fear. The memories have come flooding back. I look at her and my heart is filled with so many emotions; this fear is indescribable . I’ll do anything to protect her.
My daughter loves sports
Maja has always loved being active. Sports were her whole world. I couldn’t keep up with her when she ran. She ended up in a track and field class, and she was so proud of it—and I was proud of her. She also joined the Youth Fire Brigade, which brought her a lot of joy.
Now I look at her, sitting in her wheelchair. She’s still the same Majeczka, with a sparkle in her eyes and a twinkle in her smile. But I can see that she’s having a really hard time. The hardest part is that I can’t take that burden off her. I’m always by her side, ready at any moment to hold her hand and support her.
Everyday life can be tough
Today, our lives are different from what I once imagined. I don’t work, and neither does my husband. For years, we were there for Bartek. That was our daily life. Now we’re just trying to make ends meet. Majeczka also has a 15-year-old brother, Kamil, who also has NF1.
Please help me
There’s nothing worse than fearing for your own child’s life. That fear never goes away; it’s with me every moment. I look at Maja and see how much she wants to live a normal life. She tries so hard, despite all the limitations.
I am asking with all my heart for your help—for a chance for my daughter to continue her treatment and rehabilitation. For a life that is just a little bit easier.
Donate 1.5% of your tax
Your e-PIT is the easiest way to settle your taxes. The IRS pre-fills your tax returns, and you can verify, approve or correct them.
Promote the collection
Contributions and words of support
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